Thursday, December 17, 2015

Surgery Scheduled; Know the next one tomorrow

Will be brief b/c so, so much transpiring these next few days.  You have no idea!  LOL.  Anyhow, Irina went to the ENT on Wednesday for her followup.  Still really, really bad.  Surgery is needed asap but doc is out next week. So, January 7th is surgery for Irina to remove the polyp.  Then, they will look at the ear drum and figure out from there.  However, surgeon said good possibility this will end up being two surgeries.  We'll know in awhile if hearing loss will be permanent.  Right now, classified as conductive hearing loss--moderate.

Next, we have Alyona.  She is going to the ER tomorrow morning, Thursday.  She is in pain and sorry but we can't wait till the 25th for her appointment.  That would be cruel.  Also, rather miffed no one has called me back when I told them I needed to leave a message w/ nurse of how serious symptoms are. 

Well, today came and went.  They went to the ER.  The ER docs focused on her back pain.  They did an x-ray to make sure her hardware did not move.  Checked the pressure in her eyes.  And, said most likely a muscle spasm and to come back the 25th for her neuro appt.  Hmm is all I can say.  Her dizziness and severe headaches in the back of her skull have gone on for months and been getting progressively worse.  One doc even mentioned seeing muscle strains/ headaches in teens due to coffee/ soda.  Alyona does not drink any coffee.  She only has soda when we have a party or go to one.  That's the only time we really have soda in the occasional treat.  Now, I will say she doesn't drink that much water so we are getting on her about that one.  But the rest, she doesn't do.  My gut says something else is going on here.  Others agree w/ me on this and her therapist is going to write a letter for our next appointment.  Confusion is another symptom of hers.  So again, we wait.  Nothing more I can do.  Took her to the ER like everyone said.  Keep you posted as to what the 25th brings.

Tomorrow is busy.  Therapies, pick up Bojan, go to a friend's house, have a homeschool party here at this house, take the teens to a church party.  Never dull here.  Though kids will tell you otherwise.  I will try to catch up some more this weekend.

1 comment:

  1. Oh no...NOt having a proper diagnosis is not nice.