Thursday, October 30, 2014

MRI/ EEG today

This will be super short as it is 11:47 at night and Little Guy is still up.  They told us he may or may not be up all night.  Well, definitely seems like he'll be up all night long.  If you see a zombie around here tomorrow, I assure you, it's me.  I am dead beat tired and we can not sleep.  Screaming.  And we know it is the medication.  Which brings me to today.  Our Little Guy had a sedated MRI/ EEG.  Trouble was, it almost did not happen.  They had a great amount of trouble getting him out.  And I mean a lot of trouble.  Fighting it was an understatement.  Like it had no effect on him.  A final drug that usually knocks people out w/in a minute, took him ten minutes and even then, he was still restless.  The team was great and really made a rush to get it done as we were all afraid it wouldn't last.  Doc even noticed some seizure activity during the MRI.  We saw them do the EEG and it doesn't take a brain surgeon to figure out that screen was really active.  But, we all went in knowing he most likely had seizure activity so no surprise.  Just was shocking to watch how much.  No, we can't read it but not hard to figure out.  Plus, you see the reaction on the people's faces' there. 

We received no results today.  Not sure when we'll get them.  Ready to hear about the MRI.  Also, looking like we may need to see a cardiologist.  All of us were watching the monitor.  Now, the telemetry machines I can read!  See, that major in college came in handy for something.  LOL.  Doc really listened to him and thought she heard a murmur.  Now, other docs we've seen have given him a quick listen and have not heard anything.  So, no telling but always better to be safe than sorry so calling cardiologist next week.  We were starving by the time we got home.  Unfortunately, I didn't think we'd be there all day.  Got home after 7pm.  Fish sticks.  You know, that last resort 'meal.'  After grilled chicken, homemade mashed potatoes and corn last night, none of us wanted to eat.  Call it taking one for the team.  Kids went to youth group and enjoyed it.  The three boys had to miss tae kwon do. There was just no way to make it on time.  Overall, busy day but we got done what needed to be done.  Now, focus shifts to the upcoming trip.  Wahoo!!!  Tomorrow, only house guest has dance.  Since the homeschoolers hung out with friends today and played and went to youth group, now it is make up school time tomorrow.  I'm sure they'll be thrilled.  Hey, has to be done.  More posts to come tomorrow. I just didn't realize today would wipe me out and that we'd be at Duke all day long.  Now, to wait for answers.  The hardest part for any parent.

Tuesday, October 28, 2014

Manic Monday... a tad late

Yes, been one of those crazy kind of weeks here.  So, here goes:

  • Max got his license today!
  • Little Guy has an MRI/ EEG at Duke
  • became very clear that Little Guy has some past trauma
  • Little Guy is starting to turn around when walking
  • kids are excited about upcoming camping trip
  • kids are making some Halloween costumes
  • working on surveys
  • cleaned house this weekend
  • have speech/ OT/ PT this week for some of the kids
  • Bojan is getting two new running legs and a new leg (more later)
  • RV got inspected
  • tae kwon do and dance this week
  • Civil War class and Spanish as well
  • kids may go to story time again tomorrow
  • Max's computer needs a part
  • Sofie is stuffed up
  • weather is fantastic here in NC
  • sending in forms for Nik's new Neptunes (more on that later too)
  • parents are moving to FL for retirement
  • medical bills are just wow
  • Irina and Max are still working
  • Max is saving up for a car
  • Bojan is doing extremely well in school
  • Alyona will be in high school next year
  • homeschool is chugging along
  • need to order frog to disect (fun times...anatomy)
  • very tired
  • figuring out what we're doing for Thanksgiving
so, a ton going on and even more than listed.  Just been super duper busy and Halloween is coming up.  And no, we are not ready.  Shoot, we are an epic fail at this house.  Didn't even get all our decorations out this year.   Let you all know how tomorrow goes.  Need to get to bed.  Up in a few hours so he can eat as can't eat anything past 6am.  Oy!  Why do they do that to little kids?  Why not make them first on the docket?  His is at 12:30.