Wednesday, March 12, 2014

Alyona's MRI Results

are GREAT!!!  Best news ever.  No more neurological surgeries.  Wahoo!!!  Everything looks fantastic.  However, this does not explain the symptoms so referred us to neurology.  Since we already have a neuro in place at Raleigh, we will continue to use their doctors and Duke thought that was great b/c he said we (Duke) can't get you in any earlier than 6 months at the moment.  So, neurology to figure out the headaches though Warren and I have a theory of what may be causing that and the numbness in her arm.  See, before the surgery, she was used to walking crooked.  After surgery, she still tries to do it though the rods won't let her.  This puts pressure on her neck. Her neck muscles are hard as a rock and probably has a pinched nerve in there somewhere.  I will have to ask ortho though if it would be safe to use the chiropractor.  He is the ONLY one who fixed my numbness which is unfortunately back now.  I haven't been in two years and I am feeling it.  We were wondering if he can work on Alyona  a bit as well.  There is no other explanation at the moment for symptoms.  Well, we go to neuro and they may have some thoughts.  But truly, watching her walk and feeling how tense she is, that may be the answer.  Not sure.  Asking ortho though before we'd even make a chiro appointment.  Has to be safe first and foremost for us to do it.  Like I said, they helped me immensely.  And with chiropractor, I had no allergy issues, slept better, etc.  Will be looking into going again. 

Today, we have speech therapy for 3 of the kids at the house.  Weird not having little guy around.  But, he'll be popping by here and there for sure.  Yana also has a home track meet...maybe.  Waiting on weather.  Right now, it's a go.  Trouble is, timing.  Speech therapy here.  Trying to work out being able to go.  She took the stupid paper down which had ALL the meet dates so I could keep track.  My kids know that is one of my greatest pet peeves when it comes to scheduling...telling me the day before an event.  I need things up and seen to coordinate.  We have 4 different soccer schedules, track, JROTC stuff, and now scuba diving to work and coordinate together.  It's a job I tell you.  Plus, throw in all the other normal school stuff that happens and life stuff and medical stuff and you have a some packed weeks to work on.  Its' fine, I just need to know in advance. 

Got a call from the CIDD today.  It is an evaluation center that you can only go to at UNC by referral only.  We were referred for Nik.  Will probably do Alyona, Summer and Sofie next if we feel it is worth it.  They will do a team approach including pyschological, behavioral, educational and audiological evals.  I told them to just pull his audiology records but she said they don't do that there.  Umm, you're part of the SAME system at UNC.  Guessing you have access and would be easy to do but hey, what do I know.  I'm the parent who takes him to audiology.  See where my confidence is already waivering here.  LOL.  Be that it may, going with an open mind and hope they listen and not just form pre-biased opinions based on his history at the orphanage.  That's what happened to Max years ago when he first came home at 4yo.  By the Lucy Daniels Center.  I do not like that place not one bit.  They formed opinions on our son without ever seeing him in person!  So, after so many years of evals for my kids and doctor visits and teachers, I do have a very strong opinion of places and what I think.  I hope UNC will be open-minded and truly look at ALL aspects of Nik and how to best help him reach his fullest potential.  Oh, eval date isn't till May 5th. 

Well, kids are starting to come home.  Trying to get a lot done.  Meeting with Logan's teachers tomorrow.  Trying to figure out what to do for him.  Tomorrow is also Alex and Logan's first soccer game with this new league.  Friday I don't think we have anything after school or work. Hoping not anyhow.  More later.  Just wanted to touch base.  You know, before I forget. 

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