Alyona is now in 5th grade. We pulled her from school this year to homeschool her. We could see the frustration in her clearly last year. In addition, she was not learning. I do NOT blame the teacher. She had an excellent teacher. I liked her a lot. However, her hands are tied by laws that make no sense to me any more. Under the law, even in special ed, they must teach on grade level. Just modify the curriculum. Yeh, that's not going to work. You can't teach a kid division and multiplication if they can't add single digits w/out making a mistake. In school, everything is modified for Alyona. There is no way for her to learn that way. None. That is why we pulled her from school. Yes, she was making A's but on what?
I have Alyona now working out of kindergarten books and she is struggling greatly. I mean really struggling. I've even moved her back to preschool stuff for some of it. Adding single digits is still a struggle for her. She has trouble retaining anything. Which is part of processing issues w/ FAS. That I know. However, it is hard to watch day after day. She is 12 years old now and desires to read so badly. She picks up books and pretends to read. Gets mad if I work with her. We are thinking of going back to phonics and teaching her and Nik on the same level at this point. Not sure. Need input from others. If you've been down this road, please share some advice that may help her.
It is so hard to know your child may never be able to learn more than she already has. She may never be able to read. She can read simple sentences such as The cat is blue. But other than that, nothing. I want her to learn. I think it is important for growth. She's due to have her eyes checked again. That is a huge problem for her. They used large print at school but then ophthalmologist changed her script & that helped. He said she doesn't need large script now. With her disorder, optic nerve hypoplasia, it is not supposed to change much. Hers changed a lot last year. Yet, she never told us she was having trouble seeing. Even after asking her. We go to her eye doc like clock work every year. So, we weren't concerned. Even though fixing her glasses did not fix her academic problem. You see her working and trying so hard.
She is concentrating so hard here to try to get the glue on the acorn tops. We show her everything first. You explain something, she will not understand it. Ignore the pj's. Sometimes we just start on homeschool right away & forget we are not dressed yet. Oh well. I gave them popcorn containers to go collect acorns in the yard. They are decorating frames to put their pumpkin patch pics in. But this picture above shows just how much Alyona has to concentrate to get things just right.
I know you can't tell from the picture but Alyona is not nearly half way done and she had been working on it way longer than Nik. Even the little tasks are hard for her. Part of that though was due to her radial articulation & botched surgery job a few years ago. Her arm hasn't worked the same since. Part of it though is just how her brain learns.